Messy Miracles, a good analogy for our children. Anyone who knows us, life here is usually messy in one way or another. We don't focus on the past messes, just learn to deal with the one at hand and move on. But sometimes, those messes are where the real family moments happen and where true, unquestionable bond of love can be found.
Saturday, February 25, 2012
Bumps in The Road. . .
Every road we travel has its bumps.
Today Trayvon has hit one. It's not a big one, but sometimes
those small bumps can give a pretty good jostle when you're not
We actually slept pretty good from
1:00am to 6:45am when x-ray showed up for his daily picture. I was
shocked to see the time and realized neither one of us had stirred in
almost 5 straight hours. After the lovely photo session was over, we
both nodded off for a bit longer until the nurse arrive to do her
morning rounds. Day has begun.
I had thought, due to all of the sleep,
it was going to be a good one. Til we hit the bump.
His chest tubes were leaking heavily,
he was coughing non-stop which was adding additional agony to the
already painful tubes. Good day, fading quickly.
The coughing, pain and fever have taken him down for a bit.
Nurse returns, removes 2 IV's from his
right hand. One had been deeply placed between the pinky and ring
finger. It bled heavily and hurt badly to have the pressure applied
to stop the bleeding. Then the coughing started again with the
Cardio-Thoracic surgeon arrives. Chest
tube in right lung is not working. It is kinked and needs to be
repositioned. Sounds so simple. It actually is, but is also
profoundly painful. Tray was shaking from head to toe by the
completion of the project. Orders another chest photo to check for
placement and pneumonia.
Finally settled down after a some serious monkeying around with those pesky chest tubes.
Transplant Dr. arrives. Tray is doing
well overall, but we have some things to work on. I ask what is the
definition of “fever” in a transplant patient. . . 100.3 orally.
Tray has not really eaten in over 12
days. He does not like the hospital food at all. He's limited as to
what he can have from a restaurant and he can't think of anything he
wants from the store except tuna fish. He has had a tuna sandwich
every day for the past 3 days. Yesterday I was able to get him to
eat a hamburger from McDonalds as well. Today we talked him into
trying the Ensure juice boxes. He liked apple flavored and drank 2.
They are 200cal each. Good start.
Yet another untouched meal.
As the day went on though, he recovered
from the bump, settled into the ride and is ready to move along.
After a couple of hours in a chair, his
fever came down, he played his computer game, and even talked to his
sister and brother.
Now, he's settled in again for the
night. . . hoping to skirt around the bumps tomorrow. We shall see.